Hello you all, Today is January 31st, 2018. January 31st of each year has been provided to be an awareness day Omphalocele Warriors.
When we first found out about baby Kai’s diagnosis I had no clue what it was or had ever heard of it. I found a few stories online but that was about it. I came upon a facebook group of other parents who have or had babies with this diagnosis. It became a support group as well as a learning group for me. I was so glad to have found it because I knew there were others who have gone through this and are gong through this. While every story is very different it always a calming feeling to know that there was other that I could talk to and share our experiences with.
There is also a webpage I found of a group of mothers who run it, which you can find the page HERE.
Omphalocele is about 1 in every 5,000 births in the united States. It is an defect in the abdominal wall during the growing period in the fetus. The omphalocele can be connected to other defects or just on its own. For us Kai did initially have another prognosis which can be seen HERE in my past post. For now it is just the diagnosis of the Giant Omphalocele. You can read more about the Omphalocele condition HERE.
This post is to share our story with others who may not know and to bring awareness to those who don’t know about it or are unfamiliar with this condition. The awareness ribbon is the pattern of a cow. The group I joined is called Mothers of Omphalocele which turns its acronym into MOO, the sound of a cow. By bringing awareness we are wearing black and white on this day and sharing on social media. Even sharing this post with others will bring more awareness.
My Dress is from PinkBlush
I want to thank you all for following this journey and would love for you to share this post so we can spread more awareness. We are honoring all Omphalocele Warriors today that are here on earth with us as well as in Heaven.